There are a lot of things that I don't over share on this blog. I have mentioned that my boys have special needs, but I try not to focus on that. I never want my children to be defined by their disability-though it is the first thing you notice about them. If you spend any time with them at all, you see so much more. They are amazingly sweet kids and I am blessed that someone up there thought that I had the fortitude and strength to parent them. But the fact is that they are sick. They have a very rare metabolic condition that has only been diagnosed in about 60 cases worldwide. We have two. This condition affects their vision, their physical development and their cognitive development. Essentially they reached about a five or six month old level and stopped. They will never walk or feed themselves or swear or throw rocks at the UPS truck and the doctors have given them a lifespan of mid to late teens. That part sucks. Bad. 
I like our house, and I have shown you the pretty parts of it. I have never shown you the rotting sills or the leaking roof or the fact that we have two bedrooms and there are six people living here or the fact that we have one bathroom and it is not wheelchair accessible. Our little house is 900 square feet and 111 years old. We can't fit two wheelchairs into the house even if we could get them through the door. So, yes, a handicapped accessible house would be AMAZING. I'm just leery of opening up our weird little life to the world to maybe get it... So anyway, that's whats going on there. If you want to, and please don't feel pressured to, here is the facebook link that the physical therapist set up. TWOMBLY FAMILY
Smiles from the farm,
Lisa
Email sent. Facebook page updated. I hope this works and I can come help. I want to wear a blue shirt and hard hat. I can even help move that goat! Ted would love to help too. Heck, if you need help and don't get the house we would love to come. We can swing a mean hammer sistah.
ReplyDeletePick me! Pick me! I can swing a hammer too... I'll even come to maine to do it. :)
ReplyDeleteLisa, I do not see a disability when I see Matty and Liam. I see 2 sweet, beautiful, pure souls. There is just a peace when I am with them. I feel joy when we play together. I feel a rush of excitement when they do something new. All of the people who have the privilege to KNOW your boys are blessed.
ReplyDeleteI have felt this sentiment with other special needs kids I have worked with but I have never seen such strength and pure love as I have seen with you.
If this is meant to be it will be. You and your whole family has the support of so many people you do not even know.
God bless your beautiful boys and God bless you. I will say a prayer for God to do what is best for your amazing family.
ReplyDeleteEmailed and wrote a post on my blog... I don't have that many followers, but maybe it will help. :)
ReplyDeleteLisa, I can understand your apprehension for this. You are just so down to earth and that's just part of why I adore you! So I sent an email and passed it on via Facebook in the hopes that the world gets to see you and fall in love with your wonderful sense of humor too! Thanks for sharing with us all that you did. xo ~Lili
ReplyDeleteI'm all over this. Your story is so touching, and your boys so adorable, I'll do anything I can to help!
ReplyDeleteJust sent an email too! So exciting! Y'all just have to be chosen and I will look forward to seeing the episode. Yay!
ReplyDeleteMarigold sent me. The goat vote is loud! (At least my goats are.) I've voted. Good luck.
ReplyDelete--Terry at www.goatcam.com
Lisa, Let them knock down the house! They did a house not too far from me and it is perfect.
ReplyDeleteMarigold is very determined to see you get that new house. Never underestimate the power of a goat that ponders.
Your boys are adorable! They really do look like sweethearts!
ReplyDeleteI'm visiting from the Nester and this really is a pretty major risk. I hope you get it!
Who needs Extreme Home Makeover? Tell us when and we'll be there, tools in hand, to repair whatever needs to be done. That's an honest promise. Find me on facebook: Joy Manoleros
ReplyDeleteBlessings to your family, with love from ours!
This is absolutely wonderful!
ReplyDeleteI was alerted to your blog by Marigold at Goat Philosophy 101.
I am really looking forward to following!
Have a wonderful Spring!
Mimi
www.thegoatborrower.blogspot.com
Oh Lisa-It's truly amazing how we think we know things-we trip along through life-and then something like you and the gentle strength your family is going through overwhelms us! I too see just 2 beautiful little boys and the love radiates in them from you and your family and extended family. We live close-so you KNOW or better know we will be there for whatever you need. Blessings to you.
ReplyDelete