Showing posts with label Twombly. Show all posts
Showing posts with label Twombly. Show all posts

Saturday, March 19, 2011

MOVE THAT.......goat?


In the middle of the chaos, right smack dab in the middle of it...the boy's physical therapist nominated our family for Extreme Makeover Home Edition.  Which is an honor, truly.  Although I don't know if  I want them to knock my little house down. 

There are a lot of things that I don't over share on this blog.  I have mentioned that my boys have special needs, but I try not to focus on that.  I never want my children to be defined by their disability-though it is the first thing you notice about them.  If you spend any time with them at all, you see so much more.  They are amazingly sweet kids and I am blessed that someone up there thought that I had the fortitude and strength to parent them.  But the fact is that they are sick.  They have a very rare metabolic condition that has only been diagnosed in about 60 cases worldwide.  We have two.  This condition affects their vision, their physical development and their cognitive development.  Essentially they reached about a five or six month old level and stopped.  They will never walk or feed themselves or swear or throw rocks at the UPS truck and the doctors have given them a lifespan of mid to late teens.   That part sucks.  Bad. 

I like our house, and I have shown you the pretty parts of it.  I have never shown you the rotting sills or the leaking roof or the fact that we have two bedrooms and there are six people living here or the fact that we have one bathroom and it is not wheelchair accessible.  Our little house is 900 square feet and 111 years old.  We can't fit two wheelchairs into the house even if we could get them through the door.  So, yes, a handicapped accessible house would be AMAZING.  I'm just leery of opening up our weird little life to the world to maybe get it... 

So anyway, that's whats going on there.  If you want to, and please don't feel pressured to, here is the facebook link that the physical therapist set up.   TWOMBLY FAMILY

I appreciate any support you can show our boys, but please know that we won't be devastated if we don't get this.  It's just such an honor to see how many people truly care. 

Smiles from the farm,
Lisa